I realize I haven’t written in this since July. Life has been busy and changes have happened. Today though I need to write and that helps at times sort out how I feel inside.
I love my children dearly, often though I feel drained by the thoughts of tomorrow. My son “C” has many disadvantages for him. surprising this Christmas went much better then I thought it would. See “C” suffers from Sensory Disorder, Asthma which has landed him in the hospital twice. He also suffers from OCD, he now has a muscle disease they have no idea the name for it yet, because that would be more tests. The upside he doesn’t seem to be progressing. He sees to therapists, occupational and speech. He will be getting braces for his feet soon to help with balance.
But I think of tomorrow or the tomorrows after that. He today met his 3rd occupational therapist for the third time this past year today…ugh. She is very nice and seems to know what she is doing, but to be honest I get tired of explaining about him. I think about writing a letter so I can show it to the next person, because at the end of April he will have to have new speech and occupational therapists again. Also now they want him to have a physical therapists. I understand all for the good for him, but maybe a letter would be easier..I seem to forget about things or who I have told them too. He is also being referred to the Early Childhood program in the school district and most likely they want to do their own tests..lovely!!
I called up to his clinic today to see about his braces…not in yet, but should be next week..will call you. Then I called to see about getting his heart tests done…I like to get all done in one day. No one is in until next week 😦 They will call you…of course I work now which means none of these apps happen when I have off. I didn’t realize specialists took off during the holidays too.
They also want in the summer for his sessions to take place in Marshfield…like to get changed to Rapids. We will be one income in the summer and I like drive as little as I can.
My other son also has testing done at school and I have an appts on the 13 for that to see the results.
I try not to worry about tomorrow because God tells us not too, but I worry about bills and things not even mentioned. I know next week will be tough in the mornings…oh who am I kidding every morning has been tough getting “C” going and not having meltdowns because his hands are sticky and yes he has to go back to day care..his routine is all messed up!
Tomorrow 🙂 but when I look into those little blue eyes or those little brown eyes and they say “I love you” or luv you” I know I will make it through tomorrow.